tag:blogger.com,1999:blog-5066612659034209366.post646936343855500895..comments2023-08-08T09:08:39.745-07:00Comments on Grateful Mama: Hit Again With The TruthSugar Magnoliahttp://www.blogger.com/profile/16071565706988591786noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5066612659034209366.post-84140406669970409382011-08-14T21:14:58.638-07:002011-08-14T21:14:58.638-07:00Vanessa, please email me at sugarmagnolia70@gmail....Vanessa, please email me at sugarmagnolia70@gmail.com so we can "chat".sugarmagnolia70http://sugarmagnolia70.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-5066612659034209366.post-5719243447672517662011-08-14T20:57:27.466-07:002011-08-14T20:57:27.466-07:00ok i see it worked! so my son is also profoundly d...ok i see it worked! so my son is also profoundly deaf (so they say) in his left ear and mild loss in right. he wears hearing aid in right only bc he was fussing more when we had both on. plus he is speaking and learning so it is obvious to us that he hears enough from his right ear (even without his aids). he has astigmatism in one eye but the dr said it can go away by the age of 3 so he is not concerned right now. he also has a coloboma in one eye but it is small and on the posterior of the eye and does not affect his vision. i will retest in a year. otherwise his eyesight is fine. he tracks etc.. he has been scoped several times because he was born with laryngomalacia but that has now cleared. he always sounds flemmy/congested but they have not been able to explain this. any thoughts? it's as if he needs to clear his throat. he was late in all the areas as your daughter was, holding up his head, sitting, crawling, walking. he did walk before the age of two (he is now 2.2) but is clearly unbalanced and often falls or bangs his head into things. i could go on and on but i will wit to hear from you.vanessahttps://www.blogger.com/profile/16158803019000731164noreply@blogger.comtag:blogger.com,1999:blog-5066612659034209366.post-11539094108896840332011-08-14T20:47:55.831-07:002011-08-14T20:47:55.831-07:00i have never commented or blogged. in fact, i am n...i have never commented or blogged. in fact, i am not sure if this is even getting to you. i really would like to be able to email you about my 2 year old son. he has so many of the same issues as your daughter. most importantly, no semi circular canals. no doctor seems to know much about this. apparently it is quite rare. it is a miracle that i found your blog. i have spent endless hours on the internet researching this. i would imagine it is not the right move to include my personal email in this comment. please tell me how i can talk to you about this. will my son ever walk normally?vanessahttps://www.blogger.com/profile/16158803019000731164noreply@blogger.comtag:blogger.com,1999:blog-5066612659034209366.post-37874527923096289122011-01-28T03:01:44.197-08:002011-01-28T03:01:44.197-08:00I know it is hard, but all the more reason to cele...I know it is hard, but all the more reason to celebrate what she DOES have------a lesson for all of us, I think.marcynoreply@blogger.comtag:blogger.com,1999:blog-5066612659034209366.post-36041353686951116542011-01-27T16:03:09.577-08:002011-01-27T16:03:09.577-08:00I wonder sometimes if we don't go to the place...I wonder sometimes if we don't go to the place in our minds of how we'd feel if we lost hearing in one ear and how hard that would be. But for A, this is her normal, she doesn't know she hears differently than you, J or D-that knowledge will come later and there will be processing of that, but for now this is just normal. I know, as mothers we want to protect them from difficulty and when we can't it is so hard to accept, I'm sure I would struggle and shed tears the same as you.Kristahttps://www.blogger.com/profile/17954822307302829528noreply@blogger.com